Following doctor’s orders, Brian and Damaris Higuera drove home to let their baby die.
Not quite nine months old, Sadie had already endured a lifetime of medical treatments. Due to a rare genetic disorder, Schnizel Giedeon Syndrome, one of her kidneys malfunctioned, her intestines were displaced and her brain lacked the nerve fibers linking the two hemispheres.
“About 10 minutes later, her arms stopped twitching — and then she started focusing on me,” Brian Higuera said. “I wondered: could this actually be happening or am I just wanting it to work?”
When Damaris Higuera came home, she rushed to her baby’s side.
“Sadie,” she said, “how are you?”
Then the baby did something unusual: she looked directly at her mother.
“We got our baby back!” Damaris said, crying. “We got our baby back!”
For the Higueras, the past year has been especially happy. Sadie spent all 12 months at home, without a single trip to the hospital.